Category Archives: Uncategorized

Those Silent Tears #7

June 2007 I underwent an abbreviated session of IVIG. I was referred to a Hematologist and underwent my first bone marrow biopsy. I did not know what to expect, so I am assuming I was a bit more relaxed for the … Continue reading

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Thoses Silent Tears #6

January 2007 I became violently ill, extremely weakened and no longer had the balance to even walk. I crawled to get to the bathroom and could only wash off in the bathtub. The EMS calls became more and more frequent. … Continue reading

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We will run 1000 miles

A few days ago, I completed my 1000th mile as a member of the Genzyme Running Team with fellow team members Jessi and Phil. Over the past two years through our weekly Tuesday morning runs in Cambridge, training runs and … Continue reading

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Those Silent Tears #5

June 2006 I consulted with a Specialist who was now primarily treating pediatric patients.  I had seen him a few years back for pseudo-anaphylactic episodes and difficulty conceiving.  Little did we know those would eventually become extremely important clues to my ultimate … Continue reading

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Reflections from Orange Slices

This is my first post, so bear with me. I have many thoughts to share about my experience of running the 2014 Boston Marathon as part of the Genzyme Running Team for NORD. In keeping with our captain’s advice, Phil … Continue reading

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To our Patient Partners…

I have a confession to make. It has been ten days since the 2014 Boston Marathon, and I have not run a single step since. I haven’t laced up my sneakers, I haven’t broken a sweat, I haven’t played even … Continue reading

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Reflecting on Marathon Weekend

It’s taken me a solid week to come down from my runner’s high and be able to compose myself enough to put my thoughts into words. It’s hard to describe how amazing Marathon weekend was without sounding over-dramatic, so I’ll … Continue reading

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I have PNH, PNH doesn’t have me

I procrastinated my way through undergrad and grad school, and so it was no surprise that the marathon is days away and I am still struggling with what I could contribute to the team’s blog.  I texted my partner Dan to … Continue reading

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Running on Stories (Mental Taper, Part 2)

For better or for worse, running is a meditative sport. I say “for better” because there are few activities as good as running to help you untangle your own thoughts. I’ve written articles and presentations on runs; I’ve solved work … Continue reading

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We Own The Finish Line

Today was not just another Tuesday. It started at 5am when I woke up to the news on TV live from the Boston Marathon finish line. As the news anchors reviewed today’s planned ceremonies for the first anniversary of the … Continue reading

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