Those Silent Tears #7

June 2007 I underwent an abbreviated session of IVIG. I was referred to a Hematologist and underwent my first bone marrow biopsy. I did not know what to expect, so I am assuming I was a bit more relaxed for the … Continue reading

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Thoses Silent Tears #6

January 2007 I became violently ill, extremely weakened and no longer had the balance to even walk. I crawled to get to the bathroom and could only wash off in the bathtub. The EMS calls became more and more frequent. … Continue reading

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No Day But Today

On Friday I began a 100 km journey into the night, the start of the race marked by fireworks in the sky. In truth it wasn’t the beginning as I had already traveled 1,900 km, since the start of 2014, … Continue reading

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We will run 1000 miles

A few days ago, I completed my 1000th mile as a member of the Genzyme Running Team with fellow team members Jessi and Phil. Over the past two years through our weekly Tuesday morning runs in Cambridge, training runs and … Continue reading

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Running Heroes

Yesterday, June 4th, was National Running Day in the United States and I was happy to hear from my running partner, Andrew, that members of the Genzyme Running Team were out again and even more exciting, the rumor of new … Continue reading

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Running with Roses

This past weekend I carried a single dried rose petal as I competed in my first ultra-marathon, practice for an upcoming goal race. The pink petal that came along for the ride had recently arrived, tucked into an envelope with … Continue reading

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Those Silent Tears #5

June 2006 I consulted with a Specialist who was now primarily treating pediatric patients.  I had seen him a few years back for pseudo-anaphylactic episodes and difficulty conceiving.  Little did we know those would eventually become extremely important clues to my ultimate … Continue reading

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Reflections from Orange Slices

This is my first post, so bear with me. I have many thoughts to share about my experience of running the 2014 Boston Marathon as part of the Genzyme Running Team for NORD. In keeping with our captain’s advice, Phil … Continue reading

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To our Patient Partners…

I have a confession to make. It has been ten days since the 2014 Boston Marathon, and I have not run a single step since. I haven’t laced up my sneakers, I haven’t broken a sweat, I haven’t played even … Continue reading

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Reflecting on Marathon Weekend

It’s taken me a solid week to come down from my runner’s high and be able to compose myself enough to put my thoughts into words. It’s hard to describe how amazing Marathon weekend was without sounding over-dramatic, so I’ll … Continue reading

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